Had our meeting this afternoon about Bruce's progress in the rehab unit. The rehab team will be meeting Friday to discuss his progress and how rehab will follow after that time. We don't know at this point when he will be coming home. I asked Bruce today if he would like to see people who want to come to visit and he said yes. So if anyone would like to come to the hospital for a chat with Bruce, let us know when you would like to come over and we can give you his schedule when we know it. Generally, we know in the late afternoon what his schedule for the next day will be for therapy. He does better if there are only one or two people in the room at a time; otherwise, he becomes distracted somewhat. He is having language difficulties right now, but he has good days and bad days (I suppose like the rest of us but magnified to the Nth degree). If you happen to catch him on a good day/time, he may respond to you verbally. If not verbally, he WROTE very well today (YAY!!) and you can communicate that way as well. OR, you can just hug and kiss him, hold his hand and tell him how you feel :) He is working very hard at being ambulatory on his own. He tires easily though, which is totally normal after this type of tumor removal from the brain. Hopefully the brain will settle down, the fluid will drain, and the pathways for the synapses to occur will become more functional as time goes on. He has made FABULOUS progress from even 3 days ago. The brain is incredible but Bruce has suffered such a trauma that it takes an enormous amount of time and effort to regain even simple tasks. He smiles and laughs, and it is THAT which makes us so grateful, reassured, and appreciative of what he has accomplished thus far. :)
The oncology appointment has been postponed until December 9. I will update everyone when I get more information as to what is going to be happening and when in that regard.
Once Bruce comes home, we will also be needing whomever wishes to come visit, to do so. As we all know, people respond to positive re-enforcement and love, and Bruce will be needing/wanting that in the very near future!!
Thanks to all who have answered my calls to be with Bruce while none of the rest of our family could be. We so appreciate all of you. I will try to post more often, just been inundated with planning, scheduling, learning from therapy how to help, etc. LOVE TO ALL!!! - Val AND Bruce
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